ALS Treat Us Now is the only organization working to improve health outcomes of TODAY’S ALS sufferers by gaining them access to the potentially effective and medically appropriate investigational drugs that exist right now. We believe in turning every stone for treatments that might work at saving those who cannot wait the years it takes for treatments to become fully FDA approved.
We answer to the people who are measuring their lives in months. As a group that started as true patient advocates, we have the organizational courage to ruffle the feathers of those who are uncomfortable with patient-access issues.
We’re not careerists or social workers; we don’t have to answer to celebrated opinion-leaders, and we’re not satisfied with the slow march toward a cure. Nor do we merely cheer from the sidelines. That’s because we’re the ones in the burning house of a quick-killer disease. It’s also because ALS families and those who befriend our cause come from a broader background with more professional range than just those in the narrow ALS research and foundation world. We are lawyers, scientists, teachers, bankers, doctors, and entrepreneurs; we’re also ordinary hard-working people who have the ingenuity and perseverance to tackle problems that others have failed at. We don’t accept the status quo, because we can do better.
As is the case with AIDS, humankind may no sooner find the ultimate cure for ALS as it will discover life on Mars. In the meantime, current patients’ emergency need for near term treatment options must be kept in the spotlight.